There are a thousand sleepless nights to get through when your child is medically fragile. Waiting for answers. Waiting for change. I pick up a book I’m too tired to read. Turn on the TV but it’s too loud. So I grab your laptop and start surfing. See what my friends are doing. What trips are they taking this summer? What did they eat? How many selfies did they take? But after a while all those smiling faces make me feel more alone.
I turn to your tribe, the other parents who are up at 3 AM surfing the internet while battling anxiety. Because no one understands dread more than the parent of a special needs child.
We parents would be lost and more confused than we already are without the internet. With chat rooms to swap war stories and blogs to share our ideas we see that we are not the only family in the world held hostage by illness. Instead, we know MediCare and Social Security screws with every family. Paperwork really does get more complicated. Marriages collapse and rebuild. Children thrive despite what experts say. And occasionally we get to laugh.
Reach out. Write it all down. Maybe someone will read it and for a tiny moment I won’t be so alone. Maybe my struggle will help someone else. And maybe, if I take the time to read other stories, I’ll find the answer I’ve needed to hear.
2 thoughts on “One special needs family reaching out to another”
Sending much love to you and all those struggling with tough challenges. As the aunt of a special needs niece, ( recently passed at 22 years old) I know first hand the level of emotional and physical effort involved. I watched my sister provide loving care 24/7, with dedicated extended family and hard working care-givers. It is truly a complete family & friends involvement and is never ever easy. Feeling your pain and sending hugs with love, Ivy.
wake me up at 3am instead of the laptop. Its needs its sleep.